Tuesday, May 14, 2019

‘I DISCLOSED MY HIV STATUS SO THAT I COULD HELP OTHER YOUNG PEOPLE WHO ARE LIVING POSITIVELY’

By Onishias Maamba

AN estimated 1.2 million Zambians are said to living with the HIV virus. As at 2017, around 41,000 adults and 7,300 children became newly infected with the HIV virus.

First discovered in the early 1980’s, not cure have been found for the infections that is mostly transmitted through contact will bodily fluids such as blood.

Despite having been around for close to four decades, most people living with the HIV virus have opted to remain silent about their status for fear of suffering from stigma and discrimination.

However, some have defied the odds and come out in the open to disclose their statuses.

In this question and answer article, 19-year-old Chipata based Emilia Muzwiti, who was born positive, narrates why she decided to break the silence and the challenges that she has managed to overcome in her day to day life.

Onishias: To get our interview underway, who is Emilia Muzwiti?

Emilia: My name is Emilia Muzwiti aged 19, the first born in a family of two. I was born in the year 2000. Since 2000, I have been living positively, I was born positive. My dad was HIV positive but unfortunately he never told mum about his status.

Onishias: When and how did you discover that you were HIV positive?
19 year-old Emilia Muzwiti who 
was born HIV positive
Emilia:  In 2007, I developed sores which would heal after taking medicine but would reappear within a short space of time. Later in the year, my skin started getting dark. It was at this time that my grandmother who knew a lot about the symptoms of HIV convinced my parents to get me tested for the virus. My mother got the shock of her when we both tested positive. She blamed it on my father, though she started her medication, she couldn’t bear the thought of being HIV positive and in 2010, she died. I was only ten years old at the time

Onishias: You lost your mother when you only 10 years old, how did it feel to be orphaned at a tender age?

Emilia: “At that time it was really devastating. I was very hurt and I felt so lonely. When I heard my friends calling out for their mothers, I would ask myself that how about me? Most of the time, I would find myself crying.”  

Onishias: Have you come out in the open to disclose your status? If so when and why?

Emilia: Yes I have, last year (2018). I just had that spirit of wanting to encourage other young people who are like me, those that are being discouraged that they cannot do anything because of their status. My coming out in the open was about offering support to people living with the virus that they are people who can do anything just like those who are HIV negative. They are beautiful like that one bright start in the sky. Among my friends, I never faced any rejection as they readily accepted my status and they have been supportive. My granny too has been so supportive to me and my young sister [Sibongile] who is positive.

My relationship with young sister is nice. I treat her like my daughter, I support her and I am always there for her. I want to give her that love because when our mother died, she did not know anything.

Onishias: What career do you want pursue?

Emilia: I want to study law. I have always wished to be a lawyer. I draw my inspiration from my grandfather. Although he is not a lawyer himself, but he is so much into human rights issues. I also want to build an orphanage so that I can be offering support to vulnerable children. I want to give them love that they could be missing from a normal family support. My desire to build and orphanage has nothing to do with my losing my mother at a tender age. I just want to do it.

Onishias: Being on ART could be challenging, have you ever felt like giving up?

Emilia: Yeah, that has been happening to me. I have taking my drugs for so long now. Sometimes I feel like am tired and I just wanted to give up. However, what keeps me moving is that I have faith in God. If he wanted me to die, I would have died a long time ago. But he has he a purpose for me that is why am still alive.

Further, I have I read a lot of motivational books. I have joined a group called grassroot soccer where I encourage and educate young people who are positive on how they can continue living healthy lives. 

Onishias: There could be other young who are positive yet they have not come out in the open, what is your word of encouragement to them?

Emilia: They should not stay back because of their status. To me, I just say “Nivi life che” they need to be happy like any other person. Wherever they are, they are beautiful and handsome and God loves them. They need to stand on their feet and tell the world who they are.

At home, Emilia is a marvel to live with and that fragrance that paints a smile on her grandparents as revealed by her grandfather Richard Kumwenda whom she fondly calls, Mr. ‘Kumuz.’

Via telephone, Mr. Kumwenda narrates how proud he is that Emilia has decided to break the silence by dislosing her status.

Onishias: How does it make you feel that Emilia has come out in the open to disclose her status?

Mr. Kumuz: “Am actually very happy because she has actually been brave. We encourage her to take her medicine from the time it was discovered that she was HIV positive and she has accepted her condition. We give her all the support especially when it comes to taking her treatment. We emphasize that she needs to be consistent with it as skipping would lead to complications. My wife too has been so supportive to her and her young sister as both are living with the virus.”

Today, many people living with HIV who adhere to ART, are able to live normal lives and be productive as those living that are HIV negative.

However, there are some that have failed to disclose their status. Sadly, some have died for fear of being discriminated against by those that still perceive HIV/AIDS as an instant death sentence.

It must however be noted that people who are HIV positive need everyone’s support so that they don’t feel discriminated against.

As the saying goes “If you are not infected, you are affected.” It is therefore incumbent upon us that we embrace people living with the HIV in our communities.

     




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